Hola

Well, it’s been a week or so since I last had a freak out about things. We’re currently in the middle of a heatwave here in The Netherlands and I’ve found that having several fans going at once 24 hours a day does much to block out the noise of the idiots upstairs. So things have been better in that regard.

My baby turned one a month or so ago. I didn’t find it as awful as I thought it would be, parents and in-laws notwithstanding. She gets more beautiful, awesome and temper-tantruming by the day which always makes me laugh rather than freak out. I find that I’m finally taking pleasure in her growing up and doing stuff, instead of being stuck in hospital at her bedside in intensive care as a newborn, or feeling that I missed out and failed her the first seven months of her life. I’ve not quite moved on yet but I am slowly getting there, and really notice it in her reactions to me now as well. We are much closer and I love it. She’s my little shadow.

I also had to go back to the useless psychiatrist who still didn’t have a clue about my dosage or really what I was about full stop. It wasn’t quite as bad as last time as she seemed to slightly give a shit about me as a human this time round. But to say I have zero confidence in her would be an understatement. I also had to attend the appointment on my own as DH had to work and she couldn’t wait to get me out of the door. Which suited me fine; my case worker always attends those sessions as well and he’s fantastic so I felt quite ok about it all. He was the one who got my prescription correct and really understood what I was getting at when trying to explain certain scenarios I have found stuck in a loop in my head.

What she did do which was alter my lithium so I now take 400mg in the morning and 400mg in the evening. I noticed that I was really struggling in the afternoons, to the point of refusing to move sometimes. We’ve switched it round so my dosage is more spread out and I am also getting fewer side effects now too. Even though it’s only been a couple of days I really notice the difference so that’s good.

We also discussed the rapid escalation I have to noise sensitivity, so I go from normal to suicidal at a rate of seconds if too much sound encroaches on my airspace. I’ve been doing a lot of headset on, but that only works when I’m not caring for my daughter of course. I still cannot tolerate any level of stress without freaking out. This also applies to when my daughter refuses food or won’t sleep, for example. I was getting better but that seems to have gone backwards a bit.

So until my mood stabilises, which I think the lithium is helping with greatly right now, they can’t do any treatment of whatever else it is – which is what they have said since I began treatment nearly 3 years ago so nothing new there. They were upping my psychotherapy when I fell pregnant and had to stop. So it’s been paused for nearly two years now and I am not sure what else they intend.

What this useless woman is also still hinting at is whether I have bipolar or not. She actually asked me whether I thought I had it and for a few seconds I was like wtaf, why the hell are you asking me? You’re the doctor! So I could only reply saying yes, as this was very different to the behaviour I had displayed before we moved – bipolar dominated everything in me before – and I got my diagnosis and your colleague on the floor above you told me categorically it was bipolar 1 not BPD. Dumbass.

Urgh.

What I didn’t have the opportunity to point out was that I had been doing rather well pre-pregnancy and that a huge amount of this had been bought on by the trauma of the difficult pregnancy, labour and then spell in intensive care. I’m pretty sure it bought out latent whatevers in terms of PTSD and has aggravated that significantly. There are several excellent bloggers on here who have made me realise what a massive impact going through pregnancy and childbirth can have on  your mental health.

Whether I get listened to is another matter but, whatever. The way I see it is that I have to do this to get my benefits and my lithium, and I’ll mark time till I get a better psychiatrist.They tend to rotate every year or so, I just have to bide my time. If she tries to change my diagnosis I will demand a second opinion.

Given that it’s my health up for debate here, I feel remarkably sanguine about the whole thing. What will happen will happen. I got a letter from the agency that pays benefits the other day saying I will switch from unemployment benefit to long-term sick in the middle of next month which I see as a good sign. I don’t have to pretend to want to work any more. No idea how it all works, but DH is in charge of that so I can relax.

I had a good day today. I walked to the supermarket, leaving DH who had the day off with the daughter and dog. I realised that, even with neighbours I could happily shoot on sight, I am actually very content right now we finally have our own space back and for the first time, I can be the mother I want to be with no one over my shoulder. The weather is super toasty, my baby is doing wonderfully well and I have such a great husband. We are completely stony broke but I actually appreciate things so much more than when I was able to buy whatever I wanted. I’m more thoughtful about things and the lithium controls that impuse urge to spend, spend spend.

I have been trying to do small things to make positive changes in my life. I’ve struggled with illness on and off the last few weeks so had to park running for now, but I intend on starting up again once the weather is less oppressive. Instead, I’ve changed my diet and cut out almost all carbs and sugar in an attempt to kick-start my weight loss. And it is amazing! I used to do this before to help me improve my diet and basically ditch donuts and chocolate, and so far a week in I’ve lost around 7 pounds and have way more energy than before. I am not uber-extreme as I do have sauces like ketchup and eat sweet potato etc – and I can’t live without Diet Coke right now – but I hope this will help me get back on the straight and narrow. When I was diagnosed hypothyroid I switched to a gluten-free diet and noticed a huge difference in bloat, weight and general cognition. So that’s my aim over the next few months is to getting to eat healthily and properly.

I am a bit wary as last time I lost a lot of weight I stopped eating – something that happens in every manic phase – and I lose a lot of weight. So DH and I are watching me closely to see if there are any signs of that but so far so good.

The other thing I have discovered is fan fiction. I’m going to write about that in a separate blog but in a nutshell I’ve been writing quite a bit since completing Dragon Age: Inquisition. I  have always wanted to write a proper fantasy story and the tale of my inquisitor caught my imagination like nothing has before and I found an outlet to share it. I’m also a sucker for a good love story – man Cullen is just the hottest character BioWare could have come up with – and it is so cool to craft my own fantasy romance 🙂

I have been writing a lot late at night. You could call it manic but I don’t think so. The signs are not there. There’s no starting and not finishing projects, obsessing madly over completely random things and the impulsive behaviour isn’t there. I only write when I have downtime i.e. my baby has been taken care of and is asleep or with someone else. Otherwise I do stuff with her and put this to one side. And sleep has been fairly lacking, but it is so hot I can’t get much rest anyway so I’m taking advantage of it. And sleeping during the day when my daughter sleeps helps too.

Don’t get me wrong – I could if I was able to write nonstop for weeks at a time about this story that has intrigued me  and I am always thinking what direction it’s going in next. But I can control it. Writing has made me feel alive again and I’m absolutely loving the outlet it gives me.

Useless woman thinks I am disassociating and I don’t agree. When I mentioned what I was doing – because I recognise that it isn’t normal to sit up eight days in a row to write and write and write with about 3 hours sleep a night – she immediately said disassociation which was rather frustrating. I just found it thoroughly enjoyable.

See here’s the thing. My psychologist tells me to stop associating everything with my illnesses. My psychiatrist doesn’t do anything but associate everything I do with my mental health. I feel like I can’t just BE. What is so bad about having my alternate universe to escape to? It isn’t actually any different than gaming for days on end. Why can’t I just enjoy this story telling that I want to do? It won’t last forever. I’m fed up of scrutinising everything and not just allowed to explore my own life without an axe of mental illness over my head.

In other news, I finally made it to a playgroup and it was actually ok. DH came with me which made it much easier. I still struggle to leave the house and do stuff like that on my own but it is getting easier.

Oh and DH and I also made it away for a weekend sans child! We went to Rock am Ring in Germany and it was fucking awesome. We only went for 2 days to save money on accommodation but we were one of the fortunate ones to catch Foo Fighters before they had to cancel their tour. I turned into Mama Smurf, going a bright electric blue for the event and DH got loads of ideas about the new vinyl business he is starting up. And it was fun to just drink a few beers and enjoy time with each other (DH doesn’t drink, bonus for me on not having to drive to and from the hotel). German festivals are awesome, so laid back and relaxed. DH quite rightly pointed out the difference in atmosphere compared to the UK, where everyone just releases all that pent up straight-lacedness and ends up in a huge fight, whereas in Germany even the drunk and drugged up people were so polite to each other. No undercurrents of aggression and it was so relaxing for me. The weather was also fantastic – I’m waaaay too old to be slumming it in the mud and rain just for the sake of the festival atmosphere 😀 in fact, I don’t think I’ve ever enjoyed that in my life.

So, name of the game going forward – continue to lose weight, get some more regular exercise, sit out the heatwave and play as much as possible with my baby. And ignore what I can’t change i.e. wankers upstairs and useless police forces. Just work on our escape route in the long term and in the short term plan lots of nice one-night trips away!Rock and

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3 thoughts on “Hola

  1. BLESS GOOD DISCOVERIES. And also working medications!

    Glad you’re back. I’ve been a little MIA, so slowly catching up with everyone. You keep writing your story and let your creativity burn those digital sheets!

  2. Finally here I am! Wow – this was a juicy post. Big congratulations on your daughter turning one! I was so happy to read about your feeling more connected with her and love the “little shadow” phrase! I’m very impressed with your new healthy eating/weight loss – you’re inspiring me as I’m at the early stages of doing the same thing. I’m Auber-impressed with your writing!!!! That’s fantastic! And good for you for getting away for a bit with your husband.

    I also take 900 mg a day of lithium, but I take it all @ night. So I wondered if the useless one gave you a rationale for the specific way you take it? I take it at night because of the potential daytime sedation factor. I also was curious about this part: ” lithium is helping with greatly right now, (YES! Lithium is a huge help to me too, mainly for bipolar mania though – it didn’t help with bp depression) they can’t do any treatment of whatever else it is – which is what they have said since I began treatment nearly 3 years ago so nothing new there. They were upping my psychotherapy when I fell pregnant and had to stop. So it’s been paused for nearly two years now”

    I don’t understand why they can’t do anything else to treat you!!!!! I take an MAOI (tranylcypromine) in tandem with lithium. This dynamic duo has been absolutely key in lifting my bipolar depression….I’ve gone off about these meds in my blog (sounding like a bit of a cult member, oh well) so you might have seen that. Studies showed that lithium & tranylcypromine worked wonders in treatment-resistant people w/bipolar depression, but those studies were done in the 1970’s and were small. I didn’t care – I loved reading about how the medication worked! If I was just on lithium, this drama queen would most likely not be writing this post. 😦
    Sorry if you’ve explained this stuff in prior posts, or if I’m missing the obvious, which I probably am, but I thought I’d be a pest & ask you anyway!!!!!

    Once again, I’m thrilled about the positive changes you’re making despite the snags of inept doctors!;) Keep us posted! Speaking of posts, I’m off to read your latest one – hurrah!

    take care!!!
    Dy

    • Thanks so much for working your way through my post 🙂 The rationale for going 400mg in the morning and 400mg in the evening is that there isn’t enough lithium in my system by mid-afternoon to keep me going. I regularly crash. I also had it spread out during pregnancy so I didn’t have too much lithium in one go. So far so good – I need to tackle the lack of sleep next!

      As to the treatment well, I live in The Netherlands where to get anything beyond paracetamol is a massive pain in the rear. They do not give out medication lightly and it’s not all a bad thing I guess. Useless woman wanted me to take more Quetiapine but I refused, as it was pescribed to me in the UK for anxiety attacks, not PTSD, and I really have bad effects taking it. It’s interesting to see what you say about the drug combination. Lithium definitely works for me with depression – I had a bout when I was pregnant where I didn’t even realise that the black fog had descended. Talking to the psychiatrist she looked rather alarmed as I explained my thoughts for the day, upped my dosage significantly on looking at my blood test results and two days later I was a different person! Isn’t the body an amazing thing? We may well try out a few new drugs once I feel better.

      They won’t give psychotherapy to pregnant women as it is too traumatic. I was undergoing it for childhood sexual abuse which is where the PTSD comes from. I am convinced though that a traumatic labour and scary start to life for my daughter bought out some stuff that had been latent. They also wait till the pregnancy hormones leave you before continuing psychotherapy so that’s up to a year. I still saw my psychologist regularly which I found a great help.

      Off to go sit in the fridge to escape the heatwavve here. It’s almost unbearable!

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